QSIG Midday Talk: Co-designing storyboards of lived experience and setting research priorities to address dementia care inequities
This session explores the opportunities and challenges of conducting research with LGBTQ+ people with lived experience of dementia, an underserved population both in research and service provision. The session draws on a co-design project in which an academic team, experts-by-experience, and a visual artist collaborated as equal to produce research outputs. The underlying ethos was based on the principle of ‘to each their own (expertise)’, principles for good practice.
The session will first introduce the concept of underserved communities, based on NIHR definition. It will then illustrate why LGBTQ+ people experiencing dementia are an underserved population in research and service provision. Some of the distinct experiences and added challenges of LGBTQ+ people living with dementia will then be presented, including multiple forms of stigma, risks of social isolation, impact of dementia on identity and relationships and inequity in dementia services. The session will then describe methodologically the three elements of a UCL-Grand-Challenges project that the team undertook, comprising: 1. co-designed storyboards capturing lived experiences of dementia with LGBTQ+ community members; 2. Stakeholder workshops to set together research priorities for future LGBTQ+ dementia research; and 3. A final public dissemination and impact community event. The session will reflect on practical and methodological challenges, such as funding constraints, managing diverse perspectives, safeguarding privacy, and building trusted partnerships.
Attendees will have an opportunity to hear both from the perspective of the academic team, as well as one of the collaborators with lived experience. They will derive some reflective points and strategies on conducting inclusive, community-engaged research with underserved populations.
Click here for further details, and please find the Teams link below. This will be sent out again a week before the event and on the day. You can also find a .ics calendar invite here.
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Microsoft Teams meeting
Join: https://teams.microsoft.com/meet/349522643705513?p=HAv8wOcw4BpyADQIjv
Meeting ID: 349 522 643 705 513
Passcode: C6t2jA9Q
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